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You have now completed your cancer treatment and have agreed to Patient Initiated Follow–Up (PIFU) as discussed with your consultant at your post treatment follow up appointment.
This leaflet has been written to help you decide when (or if) you need to get in touch with the Gynaecology Cancer Nurse Specialists and how they can be contacted.
Monday to Friday 8am to 5pm.
DIRECT TELEPHONE NUMBER:
If you leave your name and number we aim to return your call within 24 hours or on the next working day if you contact us on the weekend or a bank holiday.
You should contact us if you have new symptoms that you are concerned about or if you are experiencing ongoing problems following your treatment that you may need help with.
The following list contains some of the more common symptoms people get if their cancer comes back.
However, it is important to remember that most people will not experience any of these symptoms and that even if you have all of them it does not necessarily mean the cancer has returned.
If you get any of the following symptoms for no apparent reason and they last for more than a few days, please phone your Gynaecology Cancer Nurse Specialist for further advice:
One of the following will be suggested:
A record of your call will be kept for future reference.
It is important to remember that you will still get colds, coughs, aches and pains just like anybody else.
If your GP is concerned about your symptoms, they will contact your Gynaecology Cancer Nurse Specialist who can arrange for you to be seen.
Sometimes emotional recovery after treatment does take time.
It is normal to have ‘up’ and ‘down’ days for a while afterwards.
The Gynaecology Cancer Nurse Specialists or your GP will be happy to help you with the following issues:
For information on health and well–being events please contact the Horizon Centre.
THE MACMILLAN HORIZON CENTRE, BRIGHTON
MACMILLAN CANCER SUPPORT
JO’S CERVICAL CANCER TRUST
Helpline Telephone Number: 0808 802 8000
Office Telephone Number: 020 3096 8100
Link to Jo's Cervical Cancer Trust: www.jostrust.org.uk
THE EVE APPEAL
TARGET OVARIAN CANCER
Target Ovarian Cancer Support Line: 020 7923 5475
Link to Target Ovarian Cancer: www.targetovariancancer.org.uk
OVACOME (OVARIAN CANCER SUPPORT NETWORK)
Link to Ovacome: www.ovacome.org.uk
LYMPHOEDEMA SUPPORT NETWORK
Information and Support Telephone Number: 020 7351 448
Link to Lymphoedema Support: www.lymphoedema.org
PELVIC RADIATION DISEASE ASSOCIATION
Telephone Number: 01372 744338
Link to Pelvic Radiation Disease Association: www.prda.org.uk
CANCER SUPPORT UK
Telephone Number: 020 7470 8755
Link to Cancer Support UK: www.cancersupportuk.org 4
The information in this leaflet is for guidance purposes only and is in no way intended to replace professional clinical advice by a qualified practitioner.
Publication Date: December 2018
Review Date: April 2023