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We would like to introduce the Multidisciplinary Team (MDT) for urological cancers at Brighton and Sussex University Hospitals.
This includes the following hospitals:
Urological cancers include cancers of the following areas in your body:
The Multidisciplinary Team consist of the following health care professionals:
The Multidisciplinary Team all have specialist training and experience in the diagnosis, care and treatment of urological cancers.
We work closely together to plan and deliver the most effective treatment and care for you.
This is done in consultation with you and your family and occurs at each stage of care.
If there is anything about your care and treatment that you do not understand please don’t be afraid to ask as we are all here to help you.
The Multidisciplinary Team meet every week to discuss individual patient treatment and care.
Decisions from the meeting are discussed with you by the consultant and / or the clinical nurse specialist (CNS).
We are all here to help you.
Depending on your type of cancer, you may receive a single treatment or a combination of treatments which may involve attending hospital as an outpatient, in-patient (which means that you will stay overnight in the hospital to be treated), or a day patient.
Some patients will need surgery.
Surgery is usually carried out at the Princess Royal Hospital (PRH) although some major surgery is carried out at Eastbourne District General Hospital (EDGH).
The diagnosis and subsequent treatment of urological cancer often has a major emotional effect on people.
There are contacts listed at the end of this leaflet whom you may find it helpful to talk to.
The clinical nurse specialist is here to provide support, advice or information about your particular type of cancer.
From your diagnosis until you are discharged back to the care of your GP, the clinical nurse specialist will be your keyworker.
You will be provided with their contact details so if you, your family, relative or carer need any further advice or support or have any further questions then please do call us.
There are trained counsellors within the Macmillan team based at the Sussex Cancer Centre who can provide you and members of your family with more support if needed.
Your clinical nurse specialist (CNS) is also known as your keyworker.
They take a key role in coordinating your care with different members of the multidisciplinary team and make sure you have the guidance and support you need.
You will meet them around the time of your diagnosis or you will be contacted by them shortly afterwards.
All of the Urology Cancer Nurse Specialists (or key workers) provide telephone support to patients and their carers / families which might include discussing:
Your Specialist Nurse will explain what they are able to offer you.
You will be given the name and contact details of your Urology Cancer Nurse Specialist either by the nurse themselves when you meet them or by the doctor at the hospital.
You will be given a business card which will contain their details and you may also be given a service information leaflet.
It is not always possible for the Specialist Nurse to be at their desk to respond to telephone calls immediately.
They may be in a clinic or on one of the wards seeing patients or their relatives.
They also have teaching commitments which may mean they are busy elsewhere.
Your nurse will advise you of their hours of work.
Every Specialist Nurse has an answerphone or ‘voicemail’ facility so you can leave a message for them with the following information:
This means we can identify your records quickly.
It is useful to have a pen and paper with you when you contact your Specialist Nurse so that you can write down any information or alternative contact details.
Your Specialist Nurse’s answerphone message will tell you whether they are in the hospital on that day, so that you can have an indication of when they will next be able to respond to calls.
Sometimes they will give you an alternative number to call if you need to contact them urgently. This may be a ‘pager’ or ‘bleep’ number.
If they are away on holiday, they may leave an alternative number or the name of another Specialist Nurse for you to contact who may be able to help you. If they are away for any unplanned reasons, their answerphone message should tell you this.
Some Specialist Nurses will provide you with their email address as this can sometimes be a useful way of contacting them at a time that is good for you.
Sometimes you may find that you have a question that occurs to you outside of working hours and you want to put it in writing while it is fresh in your mind.
Your Specialist Nurse will tell you if email is a good way of contacting them.
Clinical Trials are research studies which compare new or different treatments with existing ones.
If you are asked to join a clinical trail you are free to choose whether or not to take part in it.
The clinical nurse specialist and specially trained research nurses will provide you with the information you need to make that decision.
We value your views regarding your experience with our services and regularly aim to involve patients and their family, carers and relatives in reviewing the delivery of care.
For this purpose, a questionnaire has been developed and you may be asked to participate in a ‘Patient Experience Survey’ at some point during or after your treatment.
We intend to use this information to help us identify where patient experiences have been positive and also importantly where further work and improvement is needed.
You may receive one of these questionnaires by post. Receipt and completion of the questionnaire is entirely voluntary.
Please be assured that if you decide to receive and complete the questionnaire, your answers will be treated in absolute confidence and will not affect any future care.
An independent auditor will review the information you provide.
This is to help us give you the best care. If you object to this please contact the Urology Macmillan Team to speak to one of the Clinical Nurse Specialists to discuss this further.
Royal Sussex County Hospital (RSCH): Main Switchboard 01273 696955
Princess Royal Hospital (PRH): Main switchboard 01444 441881
Urology Macmillan Team:
Secretaries for the Urology Consultant Surgeons:
Secretaries for the Urology Consultant Oncologists:
Radiotherapy Reception: 01273 664091
Ansty Ward (Urology Ward, PRH): 01444 448714 Extension 68240 or 68241
Cuckfield Ward (Urology Ward, PRH): Extension 68188, Nurses Desk 68187
Trafford Ward (Renal Unit, RSCH): 01273 696955 Extension 64057
Courtyard Level 8 (Oncology Ward, RSCH): Extension 64051
Sussex Cancer Centre (Appointments): 01273 667894
X-Ray, MRI and Ultrasound Departments:
Patient Advice Liaison Service (PALS):
PALS are a patient friendly and easy to access service designed to provide a personal contact point to assist patients, relatives and carers. If you have a problem that you have not been able to resolve PALS can help you.
Urology Nurse Specialists at other hospitals
Other useful contact telephone numbers:
Disclaimer: the information in this leaflet is for guidance purposes only and is in no way intended to replace professional clinical advice by a qualified practitioner.
Publication Date: October 2019
Review Date: October 2021