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Epilepsy

What we do

Epilepsy is a neurological condition that affects the brain. When someone has epilepsy it means they have a tendency to have recurring, unprovoked epileptic seizures.

Anyone can have a one-off seizure, but this doesn’t always mean they have epilepsy. At The Alex, epilepsy is only diagnosed by a doctor who has a special interest and additional skills in epilepsy and its management.

The epilepsy team at The Alex look after around 1000 children. There are three Paediatricians, Dr Sudarsan and Dr Jeyasingh and Dr Howsam, with a special interest in epilepsy. Kirsten McHale and Laura Hutchinson are the Clinical Nurse specialist for children’s epilepsy.

 

Preparing for your appointment

Children usually attend an initial appointment where a plan and the need for further investigations will be discussed. To aid this and future appointments it is useful to bring along a diary of events/seizures, video clips on your phone and all your current epilepsy medication.

 

What to expect while under our care

You will be offered regular outpatient clinic appointments, as well as a means to contact the team in between scheduled appointments. We encourage you to contact us should you run into difficulties between appointments.

All patients with a diagnosis of epilepsy can access the epilepsy nurse service. The nurses can help with many issues, this includes; liaison with school and nurseries- signposting them to further training, offering emergency medication training, contributing towards Educational and Health Care plans, attending annual reviews at schools as required. And provide first aid, safety- in the home and out and about, driving, careers, contraception, transition and talking about their worries or concerns.

 

Location

Clinics are held regularly at The Alex with a few clinics held at Princess Royal Hospital in Haywards Heath.

 

Contact

Once seen in clinic, you will be given the team email for future contact between appointments.

For all other enquiries you can contact the epilepsy secretary on 01273 696955 ext 62318.

 

Referrals

GP’s or paediatricians can refer to the epilepsy service if you have a child with epilepsy or suspected epilepsy.

 

Patient Information

The epilepsy service can only provide non-urgent assistance to patients already known to the children’s hospital. This may not be on the same working day and will be answered during normal working hours and in order of priority.

 

If you need more urgent assistance then please:

Call NHS 111 who can help if you have an urgent medical problem and you are not sure what to do

Call your GP or out of hours service

 

Recommended websites for further information about epilepsy

www.epilepsy.org.uk

https://www.youngepilepsy.org.uk/

https://www.epilepsysociety.org.uk/

Information for educational settings

https://www.youngepilepsy.org.uk/guide-for-schools/


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