The National Kidney Federation (NKF)
National kidney charity run by kidney patients for kidney patients. Provides patient support services and information.
www.kidney.org.uk
NKF Helpline 08456010209
NKF New Patient Support Pack
Your new patient pack of easy to understand facts and an ideal place to keep your own renal records.
Send for your free copy today at the following address:
The National Kidney Federation
The Point
Coach Road
Shireoaks
Workshop
Notta
S818BW
Or call the NKF Helpline (as above)
Click here to read more about renal research on the BSMS web site.
The South Eastern Kidney Patients Association (SEKPA)
SEKPA is a registered charity which formed in 1980 to help Kidney Patients in East and West Sussex. The current Committee of Trustees is made up of volunteer Kidney Patients and their carers and is supported by Doctors and Nursing Staffs at all locations.
www.sekpa.org
Renal Patient View (RPV)
Renal PatientView takes information from your renal unit's computer system at least once a day and links it to useful information about your kidney condition and its treatment. Your blood test results are among some of the items for you to view as long as they are stored on your unit's renal computer system. As well as you, your GP will also have access and you can share your password with anyone you want. RPV is free to patients and you can enrol by completing a registration form.
For further details please do not hesitate to contact your Renal PatientView Administrator or go to www.renalpatientview.org
Guidelines
Click here to download the Guidelines for the management of chronic kidney disease in Sussex.
These guidelines replace the previous March 2006 guidelines, to align local guidelines with NICE guidelines published Sept 2008.
These are copied from exisiting renal page.
Useful Links
www.renalpatientview.org
Renal PatientView is a project of RIXG a UK group representing renal patients and the renal team. It aims to provide online information about renal patients' diagnosis, treatment, and their latest test results.
www.nkrf.org.uk
Kidney Research UK, research and information.
www.renalinfo.com/uk
Support and Resources for People with Kidney Disease.
www.dialysisoptions.org
Baxter healthcare products and services.
www.bts.org.uk
The British Transplantation Society.
www.uktransplant.org.uk
NHS website dedicated to organ transplantation.
www.kidneypatientguide.org.uk
A wealth of information in an easy to read format.
www.pkdcharity.co.uk
The Polycystic Kidney Disease Charity website.
www.britishkidney-pa.co.uk
The British Kidney Patient Association (BKPA) is a UK registered charity.
www.renal.org
UK Renal units.
www.kidneycare.nhs.uk
NHS Kidney Care works with clinical teams and commissioners of kidney care to transform the services available to those with kidney disease.
www.nhs.uk/Conditions/Kidney-disease-chronic
NHS Choices - Your health, your choices.
www.kidneyresearchuk.org
Kidney Research UK.
www.mykidney.org.uk
The aim of MyKidney is to help people understand more about their kidneys.
www.renalreg.com
UK Renal Registry
www.kruf.org.uk
Various articles on kidney disease.
www.kidneydialysis.org.uk
Kidney Dialysis Information Centre.
www.nephronline.org
Designed for patients with kidney disease, their family, friends and carers.
www.freedom-apartments.com
Freedom is an ABTA bonded travel agency that has specialised in organising dialysis holidays for kidney patients over 17 years.
www.class.co.uk/books-kidneys-57
A comprehensive selection of books on kidney failure, including a explanatory guide for the newly diagnosed, a Q&A handbook on dialysis and transplants and further information about diet and living with the condition.
